Clinical Trials & Me...
When I was close to finishing my active treatment (8 rounds of chemo and 33 rounds of radiation) my oncologist recommended I take part in a clinical trial.
I was so not sure of what to do. I mean, I had just finished the marathon of breast cancer stuff and with 2 kids, losing my job, and just you know life and wanting to get back to some semblance of normalcy I questioned my sanity for considering a trial.
The drug is called Imbrance and the trial is called Pallas. I was given the paperwork to think about and then went about trying to readjust to you know life.
But the thought of the trial was nagging me - I read the papers multiple times and could recount the 5-7 pages of potential side effects of the drug. I knew this drug was used to treat metastatic breast cancer but I was not metastatic - the point of the study is to see if this drug should be part of standard of care for early stagers as there is a plan for helping breast cancer patients stay progression free and recurrence free for as long as possible.
I was leaning towards signing up for the trial of which I would have a 50/50 chance of getting the pill or not (there is no placebo). My husband and mom were like, "Are you nuts?" and you know, I am. I signed up and got the pills and now I’m 12+ months in to a 24 month study and I have been so damn lucky.
My wbc (white blood cell) count is low so if I run fever I do need to go to hospital for work ups (which knock on wood my head my missing breast whatever) has only happened once - I am still taking the full dose of the drug (some people get it reduced to help with side effects).
So my post cancer life includes no period since February 2017, daily antihormone pills, once every 3 month lupron shot and for the next 12 months 3 week’s on imbrance, one week off.
Oh and working out, running 2 businesses, blogging, being a mom, a wife, a daughter a friend a sister and whatevs.
Look for a future post about what I wish you knew about living life as a cancer patient / survivor and about follow ups. Oh and because I am so basic, I made two videos about this and could not decide which one to use -- so here's the other one :). Which is clearer / better?
Also, did you get offered a trial? Have you been on one? What can you share about it? Thanks! Super Mom Xoxo