Fight Cancer Global created this video of 3 survivors and the ways we changed during and after our cancer diagnosis. I am proud to be a part of this … Check it out below - my segment begins after minute 3 but I suggest you watch all 3 videos. In advance of World Cancer Day, I will NEVER thank cancer for anything but I do recognize some of the changes I have made are for the better … cancer still sucks.
It is finally February - January drags on so slowly especially when you are waiting for big things. I am
leaving to go to Italy to see Padre Pio, my saint, intercessor, Spiritual Father and more in 3 days. This will be the farthest I have ever been from my kids since having them. It will also be my longest time away but it is something I am called to do.
For this new month, I will be ending month 19 of my 24 month clinical trial on Monday, the day I leave the country. My trip happens to fall on the week I am off the drug - which is just amazing and has to be divine intervention because when I booked this trip 280 days ago I had no clue where I would be in my trial drug. I will begin Day 1 and 2 of month 20 before I return - and then just 4 months left of the drug trial!
Also, I lived in Italy 21 years ago for one year - when my mom came to see me during my studies there she was 42... I am returning and I am 42...
My manifestations are always similar but this time a little different - for this month, I manifest and pray for:
That is it. I am incredibly blessed and lucky ... 2 years ago today I had my second round of chemo and was counting down to the next one in 2 weeks and now I am counting down to visit friends and spirituality in Italy - life is so blessed and amazing! What are you doing / hoping for in February?
Re writers block I have 10 or more blog ideas and things in draft but no oomph to get them out - I am hopeful this trip unleashes my writing... what do you do when you get stuck?
Economics 101... The impact of the government shutdown on the economy - Prof Lisa Vento Nielsen (#Profisin)
*Many of you do not know this about me but I am an economics professor and have taught this subject for over 15 years and I am kind of obsessed with the world of economics. While teaching college, I continually pushed myself to learn more, to understand more so I could share it in ways that were understandable to my students.
My first experiences as an educator were teaching Micro and Macro Economics in 2003. The first exam I gave, I was so excited and I ran to the scantron machine to see how my class did. I just knew they did great until I saw the scantron spitting out grades of 10, 15, 20 out of 100! I realized then that I was teaching and grading on a level that was NOT teaching anyone anything but just yapping so I learned how to tailor my content to meet the interest and levels of everyone and here I am about to cross over those skills to this topic of the government shutdown.*
Ok first of all, do NOT think this is political because I do not get politics AT ALL - and I do know that politics and economics are married in many ways but I refuse to touch this dynamite with a 20,000 foot poll and also refrained from bringing politics into my classroom EXCEPT for 2016 (if you are reading this and I taught you in 2016 HI!).
Here is where we stand though with 800,000 Americans NOT receiving a paycheck and most people do not understand why / how this is a big deal or maybe unfortunately they just do not care. Here is why they SHOULD care and care NOW -
Every single family NOT being paid (with approx. 70% of Americans living paycheck to paycheck - meaning no savings to live off of and to continue to function) is a strain on the economy IN ADDITION TO BEING HUMAN LIVES THAT MATTER - but ok, so back to my topic - they do not get paid, which means that:
That is a big impact, a ripple affect, sure but one nonetheless that impacts countless more folks and businesses and the economy as a whole.
Let's try this scenario - on the micro level - a restaurant that used to have tons of government workers and their families is now not seeing enough diners to keep their full staff so they begin to let people go AND a daycare center that used to service the children of those who are not being paid are now not being paid for those students' and this impacts them having to let go staff or cut back on hours of staff.
The scenarios go on and on and remind me of the mortgage crisis when the housing bubble went POP with people using their mortgages to live - everyone had their housing values continue to go up and up and they would, every few years, go back in and "refinance" their homes to unlock "equity" and get the money needed for vacations, weddings, medical procedures, etc. (As a whole America has not been a nation of savers period so when things happen, we need access to capital and our houses acted as an ATM for many.)
Our access to refinancing our mortgages crashed and burned in 2007 and many folks found themselves losing their homes, many executives in the banking world rightly lost their jobs (trying to keep this all simple but it was much more complex than this - read The Big Short to find out more) and ALL of the folks who benefitted from the extra spending were cut back, too - the cleaning staff, the party planners, the restaurants, etc and we were plunged into a recession.
We are already in a place of severe economic issue - yes, so far, everyone who wants a job finds one (unemployment has been low) and our economy is still running but for how long does it last when 800K people and their dollars are not in the system? Is this food for thought? What happens next? And not to be that much of a pessimist but let us not forget the safety concerns of TSA & Air Traffic Controllers not being paid as well as our military and Coast Guard and more - in a post 9/11 world, are you confident this won't get WORSE before it gets better? Politics aside, let's find a way to get the government back in business - our economy and in my opinion our safety and the children and adults struggling right now all depend on it.
What do you think? Are you being impacted by the government shutdown?
Holiday & New Year Recap...
December is always a crazy month - there is my birthday and my mastectomy anniversary date in the same week - 12/13 and 12/16 respectively. There is my mammogram right after Christmas and my surgical follow up, too - oh and a clinical trial follow up in the midst as well...
So to say it was a busy month is an understatement - and that is without layering in kids’ stuff like basketball games, fun get togethers, Christmas preparation, wrapping gifts, last minute shopping, cooking and cleaning and well we alll know the drill.
In December, we really got hectic but through all of it, it was joy. Yes, I had been stressed and continue to be about some private issues with my spouse but all in all I work hard on my mantra of being in the moment, grateful and joy focused.
It is not always easy.
My mammogram was scary but not as scary as last year so that is a huge improvement. I actually slept the night before! Huge! Then waiting between the squeeze and sonogram was some stress of course but moments after the sono I got the letter all was negative, no cause for concern and then it was off to the surgeon.
I met with the amazing nurse Liza and she told me that was it - it was time to discharge me from surgery as it had been 2 years - what a milestone. I know that most folks who have been through cancer experience less and less appointments and eventually transfer their care just to their primary doctors or local doctor but being on my clinical trial means I do not yet have that demarcation or that “dumping” by my cancer center yet, lol. Being told my surgical appointments were at an end was my first kind of untangling from my frequent follow ups at Sloan. I did not feel afraid or dumped but ready to have one less appointment to work around - especially as I consider going back to work full time.
2 weeks before my Mammo I had my clinical trial check up and saw my oncologist and was told all is good with my blood, had a physical chest exam and got my next 3 months of pills which are 18, 19 and 20 of a 24 month trial for the drug Ibrance which means I am soo close to the finish line.
I told my oncologist about my upcoming trip to Italy and she was so excited and remembered that my dad had been so sick she said, “it is amazing you guys can go on this trip after how your dad almost died!” I am always impressed at what the team remembers about me and my life!
My next posts will be about special nyc events, New Years manifestations, January goals and trip countdown!! Can’t wait to share and happy New Years (a little late) to all of you! What are your resolutions?
I am so honored to be a part of this amazing FREE teleseminar beginning this week - my talk airs on January 23rd but you MUST sign in NOW to get access to the amazing information, the FREE resources centered on "Shattered Woman Rising".
To me, this topic is near and dear to my heart - and to ALL of our hearts. It goes beyond being a cancer survivor, though, and looks at the unique challenges of being a female and balancing our lives through disease, destruction, addiction, abuse, and more.
My talk of course centers around the narrative of cancer - Erin is also a cancer survivor and when she reached out to me via LinkedIn to be a part of this, I knew I had to do it!
I hope you sign up for this free resource and get as much out of it as I intend to as I will be signing up myself!
The link is below! Thanks!
I am at a crossroads in my life... I am looking at the choice between a big life / less time with loved ones and a smaller life / more time with those I love. I am also caught between budgets and financial pulls. I don’t stress over finances anymore but I do realize that it is something I have to eventually face.
Something I am realizing is that it takes a village to survive life period - without help from family and friends it is extremely hard to be a mom and try to have a life for me.
Unfortunately some of my village is “shrinking”. Of course, the amount of help and support I got during active treatment was off the charts but now that my active treatment ended almost 2 years ago (thank God) and since then some family have moved away, some are not well, others went back to their regularly scheduled lives and all that means my safety net is thinner.
I am so happy not to be desperate for help but thinking about some of the things I was scheduling for 2019 given recent issues I just do not have a clue how to make them work. It is causing me some cognitive dissonance - I want to be able to trust that I can live my life and put myself first and that all will be ok but I am not sure. And as a woman period forget about being a mom, too, who at times is more of a single mom in many ways, how do I put myself 100% first? When I’m still primary caregiver for little ones? When fevers and car pool duty and homework and meals and fun and sports and life is my planning forte / world?
Instead I am thinking of a different road - instead of world renowned cancer crusader speaker etc to I don’t know maybe a more normal 9-5 job, balancing act of home and work and not fame and home ?
I never wanted to be famous - I wanted to help others but who needs the most help from me?
This is my quandary - when there are issues at home, it’s on me and when I doubt myself as to how I can make it work and how I can care for kids with fevers when if I get one I have to go to hospital I just do it anyway- one because I know in my heart I am the mom and this is where I belong and two because there is no one else to do it.
If I’m not here (either for world domination of speaking and touring lol) or God forbid the other unthinkable - who does it?
I did the math recently - I will have 2 “adults” within the next several years - time goes so quickly and while I do not want to go back to being pre cancer “I am only a mom” me I still do have responsibilities and passion for being a big part of these little people’s lives especially when I do not have the co parent role working too well and my village is thinning out...
How do you plan your lives with multiple responsibilities? What takes priority? How do you balance?
It is the eve to New Year's Eve and I am reflecting on the year that passed and what is ahead - I am praying for continued health above all - the rest is just gravy (good or bad, it is still gravy).
This Christmas has been magical and also full of good and bad, just like life. I made the holidays work with a wing and a prayer - without working full time and with only one client left of my small business and a few initiatives with my nonprofit, it was a tight squeeze this holiday season but I made it work - which is a blessing. My kids do not care too much for material things after the past few years but of course they did need stuff like clothes and a few things for under the tree as "presents" and though it was less then previous years, it was still a great haul for them!
I was even able to get my husband and family members meaningful stuff - and I am so happy everyone was happy. For me, I got the exact things I needed/wanted - love, togetherness and a new fitbit! My mom was sick for Christmas with a bad cough so she did not visit - with my clinical trial drug, I need to be careful for infections / germs and her medical doctor told her to just stay alone for Christmas so as to not infect everyone!
Christmas, my dad did not look too good. He was barely able to keep his eyes open - my youngest brother lives with him and brought him to the hospital that night. I went the next day directly to the hospital to see my dad - he was released the next day when I was at Sloan for my mammogram and sonogram on my remaining breast.
A stressful time but much less stressful for me and my breast - I kind of had my scanziety under control UNTIL I was getting the mammo and sono done - then I freaked out but minimally... I got the negative reading on the mammogram - which is good and then met with surgeon's office for a follow up. I was told I was being discharged and did not need surgical follow ups anymore - it was bittersweet as I love my surgeon and the staff there (Liza for the win) but it was time for me to move on and say goodbye, God willing forever because I would only need to go back if there were an issue and we don't want issues...
Then just last night, my mother in law got taken to hospital by ambulance and she is still there. It has been a lot of up and down lately and it all reiterates the belief that health is everything.
I have to say that 2018 was a learning experience for me - living post treatment, on clinical trail for 18 months (of 24) and preparing for an international trip in the beginning of 2019 and just staying focused on sharing my story, being focused on my nonprofit and trying to figure out what I want to be when I grow up. I have found a way to balance out my fears and stay focused on the TODAY and not worry about yesterday or tomorrow - no easy feat but with meditation, hypnosis, self care, writing it out and being as close to me and what I need in life and what I have to do to care for myself have been key for me.
I do hope I can get to Italy in February and that I continue to grow, learn and make up my mind for my "plan". I pray to remain NED and to finish the trial and be able to God forbid run fever without having to run to the hospital :). What are your plans for 2019? Let's do it! Healthy & Happy 2019 for all of us! XOXO
Hi, I am Super Mom (supermombc.com) – your friendly neighborhood superhero who brings you the real truth about being a one-boobed mama who has survived cancer but cannot handle homework with my 8 year old! Let me tell you more in this piece all about being a parent AND cancer patient...
My original life “plan” was to consider getting married and having kids when I turned 40. If I had followed that path, I would not have been able to have children as I was diagnosed at 39 years old with estrogen and progesterone positive breast cancer. I know so many people, though, who were diagnosed younger than my age at diagnosis and were able to have kids miraculously either naturally, adoption or fostering and I know others who have resigned themselves to not having children or who did not want children - there are so many permutations of life as a woman.
Having children is one of the most amazing, hard, terrible, magical, life-changing things in the world. For me, being a mom is what defined me – it became my only identity, for better or for worse from the day I delivered my daughter in 2007 and my son in 2010 (one natural delivery, one C-section, both sucked except for the end results - oh and in between 2 miscarriages).
I was alone with my children more than I was with my partner, my much beleaguered husband, or anyone else. I spent years carrying, balancing, running and being the be all and end all for the kids because there was no one else to do it and I had lost myself, anyway so what difference did it make if I did not do anything for me - what did I matter anymore now that I was a mom?
I left my 6-figure a year job in NYC to be with my kids. To being an entrepreneur, balancing it all ONLY when my kids were at school. Being a mom was all I had time to do – for better or for worse.
When I had to sit them down and tell them mommy was sick, they were 6 and 9 years old and I was their whole world. I did not do this maliciously or because I wanted to be the best mom in the world (at least, not consciously) but because I did not see any help in the world – period.
I learned during my diagnosis, treatment and beyond, though, that there were people who wanted to help, who could help and that I never would have opened myself up to because I was “mom” and I had to “do it all”.
My daughter was 9 and she processed everything in a matter of being a soldier – she asked me right away if I was going to die and I, of course, told her “No, no doctor has said that I will die, I am ok.” She guessed that they would cut off my boob as I told them I had a boo boo there. My son was more emotional and upset – the day of my first chemotherapy, when I came home and went right to bed, he sat beside my bed on the floor crying. (Sorry kids when you are old enough to read this, I am sharing your secrets).
Once my treatment was over, though, my daughter had to learn to process her feelings of fear, anxiety and the biggest fear of all – that of, “Will my parent die?” When I was a child, my mom was in a life-threatening car crash and then she left my family (sorry mom) and I could understand the fear of losing a parent – even now, I am lucky enough to have both my parents still alive and of course I worry if they were to die even now at almost 42 years old.
We are all learning how to navigate this world of unknown – I hope to continue to be NED but my diagnosis was less than 2 years ago and I know enough about breast cancer to know there are no “guarantees” though my children need to have them -they ask often to confirm that I am well and healthy – and for now, I can continue to tell them, “yes”.
The impacts of cancer is that of continual ripples – I recently decided to remove my ovaries to help keep my hormones in check and the realization that I will not have any more children sometimes hits me and I feel gluttonous as I am so so lucky to have the two that I have. I am one of 3, though, and my paternal grandma who raised me also had 3 children. I am resigned to the fact that with or without cancer, I was lucky to have gotten my 2 children as I had two losses in between those pregnancies.
I hate thanking cancer for anything but I do know that without it, I never would have stepped down from being the Type A control freak uber-mom to knowing that if I am not taking care of myself, no one is going to be ok and instead of being guilty and doubting myself, I know I am a kick ass amazon mom (or at least, the best I can be.)
I posted this last week then took it down - after making some edits, I am ready to share it - it’s raw and I hope you can read it and be kind. Thanks ...
On our first date, we saw the movie "A Beautiful Mind" and I had no idea how prescient that movie choice would be for our lives together. I do not know if I did know if I would have walked away. Me, who never wanted to get married or have kids, wound up meeting, falling in love, moving in with, marrying, having kids with an Irish looking police officer - of all things. Not at allll what I thought I would do, wind up with or even consider.
For many years, I dealt with his issues with ANGER - hot, white, extreme anger. I did not want to feel the pain - the pain of loving someone who is their own worst enemy. The fight, the losing battle against a mental illness that is too strong to win against. The meds that "work" but cause havoc on so many things and lastly, the paranoia. The fixed paranoia that will never, ever go away...
Most of the time, it is controlled but when it is not, when it flares up like a malignancy and wrecks his abilities to function, to be present, to be the man I love - well when that happens after I no longer built up my walls, after I gave up the anger, after I came to understand that this man - who though not by any means perfect or well - helped me survive cancer and did always love me and still does despite my faults - I recognize that all I feel is bereft, sad, scared and so so afraid for him. Not of him. Never of him. He is a gentle soul - he would not hurt anyone or anything.
In this country, mental illness is maligned and blamed for every bad thing that happens. I get it - I was very ashamed of his issues and also unsure of what this future would entail as for us, in sickness and in health was a vow we took on shortly after our marriage. It did not begin with cancer. It does not end with cancer.
For many years, I took care of him and handled all of the things that he could not. Those things have come back to my domain since I finished my cancer stuff. There are things that still are not done - do not judge my backyard when you come over as the garbage was not taken out for a few weeks - he literally cannot do it and I struggle with being out in the cold and touching garbage while on a clinical trial pill. Do not judge him for being spacy and confused - or for sleeping often during the day - he is struggling with a disease - just like I did with cancer - but his disease is not understood, is feared, is reviled, makes people not want to know him when he lets his guard down, makes people judge him, take steps away from him as though he smells and manipulate and abuse him, too.
He is a trusting soul and the beginning of his biggest downfall was from trusting the wrong person many years ago. He went from being a police officer in the biggest city, busting bad guys, to having to defend himself against someone who tricked him fully into a faulty business arrangement.
For many years, his medical team told me to expect nothing from him, that he would never recover. I moved around him, I tried to include him but when I could not, I took on the role of mother and father and anger. Anger was always inside me, the "unfairness", the trump card that was mine - having married someone who could not function, who could not live up to the basic tasks that are needed to survive - to bring the car to the shop, to clean up after themselves, to take out the trash regularly, to help raise the children, to care for his mom in her old age, etc etc.
When I was first diagnosed, I expected him NOT be there - it was all I knew. The night before my first appointment at Sloan, he was "sick" - he could not move from the bed. I knew in my heart that I would be alone again and in a way, as it is what I expected and was used to, I knew how to protect myself and how to propel myself forward. But then, he jumped out of bed and got ready and we went and he did not miss an appointment at all period full stop. I was flabbergasted and I still am - I gave up my hard coating, my self protection mechanisms and now all I am in exposed to emotions - as an "ice princess" I did not handle emotions.
Post cancer, emotions are different - I feel them more, I experience them fully. But here I know I cannot move on - that this disease he has will not go away. It might dissipate when the pressure recedes but it also might not. The past has shown him to be resilient and bounce back from the brink...
Now, though, I just want to figure out how to stop my crying, how to get back into "balance" with the world that he lives in - to know that all I can do is pray and hope and not worry because no one is in control - he has no oncologist (God forbid) planning his treatment and "cure" - there is no cure for what he deals with much like others with mental illness - there is just managing symptoms. Many folks ask me why he can’t focus on getting better or work to take control of his demons but they just do not truly understand mental illness. Yes, there are things he could in theory do but in reality he cannot plan to work out more, to sleep better, to be more involved - he can only stay status quo with meds and maybe someday find a way through to being more proactive... I feel this is like blaming the victim in a way - I could not stop myself from getting cancer and he can’t stop himself from being who he is either.
This is the most raw thing I have ever written - I have tried not to disclose too much about what my husband deals with or tell his story but his story is entwined with mine - we are one I guess right? That is what they tell us during our marriage ceremony. Please, be kind - if you see someone struggling, do not assume they are a piece of shit or lazy - think about what demons people face and what they are equipped with or not - be kind in his name and pray for those who cannot live the life they should due to invisible illness.
I am so excited to be published in the Winter 2019 edition of Cancer Health Magazine. This blog is serialized on Cancer Health here - originally my blog at thetimebetweenis.org/blog was serialized but then I became a nonprofit in Spring 2018 and wanted to focus that blog on the work we are doing to help cancer survivors get back to "normal" - or the "new" normal - and created this blog to be my musings, my confessions and my freak outs and of course my story of survival of trying to balance it all. I was so happy when Cancer Health was still interested in serializing my streams of consciousness and even more thrilled when they asked me to write the article for the issue about my work with survivorship.
When we are diagnosed with cancer and in treatment that everyone is there to help from the hospital to organizations to friends and family. As we move into "survivorship", there is a lack of resources available to help us get back into the swing of things. This article is just a sliver of what The Balance After Cancer Foundation focuses on but it is an important piece to the puzzle. Many cancer survivors, such as myself, lose their jobs during their illness and/or find they can no longer do what they did before or have to continue treatment for life for our stage 4 brothers and sisters do and this is also a part of survivorship. I spent over 20 years' helping people take the next step with my small business (aptly named The Next Step) and do find that work and dignity and life are all tied together.
Having a routine, something you LOVE to do, a passion, a plan is all so important to getting back to this "new normal". With free online courses, books, workbooks and more my foundation is something I am very proud of and hope to help many folks with as cancer is not as rare as you think it is - it is something that within a few years the estimate is over 50% of Americans will experience.
I also want to say that my goal is beyond work - some of my recent mentees had training about positive thinking, relationship building and more - all new initiatives we are piloting.
Keep in touch and let me know what you wish you had to help you with survivorship? Let me know in the comments or at Instagram or via email at email@example.com.
Super Mom BC Eradicator - connect with me via the icons above :). Thanks! XOXO LISA (my secret identity ... )